“The Twelfth Social Affairs Committee will have to deal with the affairs of ALS patients, and in general with the most serious and numerous patients in our society. In my opinion, there is a cultural issue, we must let all citizens know that diseases exist, such as ALS, and the consequences Patients and families, because there is still so little knowledge of these facts. At the same time, we must develop all those measures to support families.” Thus Paolo Ciani, deputy and member of the Chamber’s 12th Social Affairs Committee, on the sidelines of the presentation of the “My Voice” campaign promoted by Isla with NemoLab and Nemo Clinical Centers yesterday afternoon at Teatro Tirso la Molina in Rome . “The topic of diseases such as ALS – continues Ciani – shows us how the family and many people interact with what Pope Francis defines as a ‘culture of waste’: there is an admirable closeness, love and perseverance that should be an example for all of society. It is clear that institutions, through professionals Well trained, you have to provide the right support to the families and that is why we are here today, not only to show our solidarity but also to testify that there are vigilant politicians who will bring this sensitivity within the institutions.”